The Rheumatology Research Foundation (the “Foundation”) has a policy of keeping all donor information private, and does not sell, rent, or share its mailing lists. All donor information is kept securely and disclosed only by what is required by state and federal law. Below is information on the Foundation’s privacy practices for the following areas:
- What personally identifiable information the Foundation may collect
- What personally identifiable information third parties may collect through the website
- What organization may collect the information
- How the Foundation may use the information
- With whom the Foundation may share user information
- What choices are available to users regarding collection, use and distribution of the information
- What types of security procedures are in place to protect the loss, misuse or alteration of information under Foundation control
- How users can correct any inaccuracies in the information
INFORMATION COLLECTION AND USE
The Foundation is the sole owner of any information collected on www.rheumresearch.org. The Foundation may collect information from our users at several different points on our website.
In order to use this website, some users may be asked to complete a registration form. A user is required to give certain contact information (such as name, password and e-mail address) during the registration process. We use some information for access to our site and may use this information to contact the user about services on our site for which he or she has expressed interest. The provision of other information is optional but encouraged so we can provide a more personalized experience on our site. This information remains the sole property of the Foundation. It is not sold and is only shared with third parties when necessary to provide certain services. For more information, see the “Sharing” section.
Donation or Order Information
We request information from users on our donation and order forms. A user must provide contact information (such as name, e-mail address and mailing address) and financial information (such as credit card number and expiration date). This information is used for billing purposes and to fill customers’ orders. If we have trouble processing an order, the information is used to contact the user.
We may store information that we collect through cookies, log files and/or clear gifs. A profile is stored information that we keep on individual users detailing their viewing preferences. Consequently, information collected through some of these means is tied to the users’ personally identifiable information to improve the content of the site for the user. This profile is used to tailor the services provided to a user through our site. Information in users’ profiles is only shared with third parties when necessary to provide those services. For more information, see the “Sharing” section.
A cookie is a piece of data stored on the user’s computer tied to information about the user. We may use both session ID cookies and persistent cookies. For the session ID cookie, once users close their browsers, the cookie simply terminates. A persistent cookie is a small text file stored on the user’s hard drive for an extended period of time. Persistent cookies can be removed by following Internet browser help file directions.
By setting a cookie on our site, users would not have to log in with a password more than once, thereby saving time on our site. Cookies also enable us to track and target the interests of our users to enhance the experience on our site. See the “Profile” section. If users reject the cookie, they may still use our site.
Like most standard website servers, we use log files. This includes Internet protocol (IP) addresses, browser type, Internet service provider (ISP), referring/exit pages, platform type, date/time stamp and number of clicks to analyze trends, administer the site, track user movements in the aggregate and gather broad demographic information for aggregate use. Data collected through log files, such as IP addresses, etc., is not linked to personally identifiable information.
COMMUNICATIONS FROM THE SITE
Special Offers and Updates
We may send all new members a welcoming e-mail to verify their password and username. Established members will occasionally receive information on products, services, special deals and a newsletter. Out of respect for the privacy of our users, we present the option to not receive these types of communications. Please see the “Choice/Opt Out” section.
If a user wishes to subscribe to our newsletter, we ask for contact information such as name and e-mail address. Out of respect for our users’ privacy, we provide a way to opt out of these communications. Please see the “Choice/Opt-out” sections.
On rare occasions, it is necessary to send out a strictly service-related announcement. For instance, if our service is temporarily suspended for maintenance, we might send users an e-mail. These communications are not promotional in nature. Users may opt out of these communications. Please see the “Correcting/Updating/Deleting/Deactivating Personal Information” section.
We communicate with users on a regular basis to provide requested services and, in regard to issues relating to their account, we reply via e-mail or phone, in accordance with the user’s wishes.
Though we make every effort to maintain user privacy, we may need to disclose personal information when required by law wherein we have a good-faith belief that such action is necessary to comply with a current judicial proceeding, a court order or legal process served on our website.
Aggregate Information (non-personally identifiable)
We do not share aggregated demographic information with any third parties.
We do not share personal information collected from this website with third parties for any uses other than Foundation-associated business.
Third Party Intermediaries
We use outside companies for necessary business tasks, such as shipping orders and processing credit card payments. It is our understanding that these companies do not retain, share, store or use personally identifiable information for any secondary purposes and such information is protected and encrypted. However, the use of personally identifiable information by third parties is governed by such third parties’ privacy policies.
We partner with other third parties to provide specific services. For example, we use third-party companies for application submissions, delivery of communication materials and other necessary activities. We may share names, address information, phone numbers, fax numbers and e-mail addresses in cases where it is necessary for the third party to provide these services. These third parties are not allowed to use personally identifiable information except for the purpose of providing these services. We make our privacy policies clear to any service providers, and adherence to these policies may be required for maintaining a business relationship with the Rheumatology Research Foundation.
Our users are given the opportunity to opt out of having their information used for purposes not directly related to our site at the point where we ask for information. Users who do not wish to have us use their fax numbers or e-mail addresses may opt out of receiving these communications by e-mailing us at firstname.lastname@example.org, calling us at (404) 365-1373 or mailing us at Rheumatology Research Foundation, 2200 Lake Boulevard NE, Atlanta, GA 30319.
This website contains links to other sites. Please be aware that the Foundation is not responsible for the privacy practices of such other sites. We encourage our users to be aware when they leave our site that they are doing so and to read the privacy statements of each and every website that collects personally identifiable information. This privacy statement applies solely to information collected by this website.
This website takes reasonable precaution to protect our users’ information. When users submit sensitive information via the website, their information is protected both online and off-line.
Sensitive information, such as credit card numbers, is encrypted and protected with strong encryption software. Encryption means the credit card number is scrambled so that it is virtually impossible to be decoded and read by a hacker or other unintended party. While on a secure page, such as our donation form, the lock icon in the web address bar of web browsers, such as Microsoft Internet Explorer and Google Chrome, becomes locked, as opposed to unlocked or open, which is seen when users are using an unencrypted page.
While we use SSL encryption to protect sensitive information online, we take reasonable precautions to protect user-information off-line. All of our users’ information, not just the sensitive information mentioned above, is restricted in our offices. Only employees who need the information to perform a specific job (for example, our customer service representatives) are granted access to personally identifiable information. Finally, the servers that store personally identifiable information are in a secure environment. If users have any questions about the security of our website, they can send an e-mail to email@example.com.
Access by Children Under 13
The Foundation will not knowingly accept any information from an individual under the age of thirteen (13) years. In compliance with the Children’s Online Privacy Protection Act (“COPPA”), any information that the Foundation may receive from any individual who is reasonably believed to be under the age of 13 will be deleted. If you are under the age of 13, please do not provide any information (including personally identifiable information) through the site. If you are under the age of 13 and have already provided information through the site, please have your parent or guardian contact us immediately using the information below so that we can remove the information you provided from our files.
Children under the age of 13, or equivalent minimum age in the relevant jurisdiction, are not permitted to register through this site.
Correcting/Updating/Deleting/Deactivating Personal Information
If a user’s personally identifiable information changes (such as zip code, phone number, e-mail or postal address) or if users no longer desire to use our service, we provide a way to correct, update or delete/deactivate users’ personally identifiable information. This can be done by e-mailing the Foundation at firstname.lastname@example.org, contacting us by telephone at (404) 365-1373 or mailing us at Rheumatology Research Foundation, 2200 Lake Boulevard NE, Atlanta, GA 30319.
Notification of Changes